We are looking for feedback on the #NIHRoktoask campaign from patients, researchers, everyone…. Please help and RT.

We are the only country which runs a public awareness campaign across our national health system to encourage people to participate in clinical research - NIHR 'OK to ask'.  We've been doing it for three years on the trot to coincide with International Clinical Trials Day (ICTD) in May.  Now we want your views on how... Continue Reading →

Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?

Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis.  The aim of the task force is to enable people to get an earlier and speedier diagnosis of their tumour in the future.  But it will also be looking at treatment and... Continue Reading →

Wherefore app thou? Perspectives on digital and social media in health for 2014

How long before GPs prescribe you and I a mobile phone 'app' for our condition instead of a pill, a test or some other treatment?  Sounds farcical doesn't it? Perhaps it is already happening?. As a reviewer it amazes me the number of new ideas for helping patients that come before me in the guise of 'social media' which actually... Continue Reading →

New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?

This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here.   Patientslikeme is capturing a lot of attention here in the UK... Continue Reading →

In defence of the clinical trial patient: a health research ombudsman?

Over a half a million members of the British public took part in clinical trials through the NIHR Clinical Trials Research Networks in 2010, a 24% increase on the year before.  Those are the Government's figures, not mine. Last week's 'life sciences' announcement included a range of measures to increase patient recruitment to trials.  These include... Continue Reading →

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