We are the only country which runs a public awareness campaign across our national health system to encourage people to participate in clinical research - NIHR 'OK to ask'. We've been doing it for three years on the trot to coincide with International Clinical Trials Day (ICTD) in May. Now we want your views on how … Continue reading We are looking for feedback on the #NIHRoktoask campaign from patients, researchers, everyone…. Please help and RT.
Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis. The aim of the task force is to enable people to get an earlier and speedier diagnosis of their tumour in the future. But it will also be looking at treatment and … Continue reading Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?
How long before GPs prescribe you and I a mobile phone 'app' for our condition instead of a pill, a test or some other treatment? Sounds farcical doesn't it? Perhaps it is already happening?. As a reviewer it amazes me the number of new ideas for helping patients that come before me in the guise of 'social media' which actually … Continue reading Wherefore app thou? Perspectives on digital and social media in health for 2014
I once wrote an article for a local rag bemoaning the state of the town's railway station. When, two days later, the council announced plans for its complete redevelopment I expressed my shame and guilt to a friend for not having known this. "Simon," he said after a long pause, "it sounds like a simple case … Continue reading UK Clinical Trials Gateway (UKCTG) now shows open trials by location in early Xmas stocking filler for patients
The New Zealand Government has launched its own clinical trials portal in the last few hours. You can find it here. This is the speech by the Minister for Health, Tony Ryall. I have not spec'd the portal out but will be interested in the views of those who do have time to check it … Continue reading New Zealand launches clinical trials portal for researchers and the public
This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here. Patientslikeme is capturing a lot of attention here in the UK … Continue reading New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?
This is already doing the rounds on twitter but I thought I would share the email/letter that I have sent out to those who took part in the survey.... I am pleased to let you know that the results of the UK Clinical Trials Gateway (UKCTG) Patient and Public Survey conducted last summer have been … Continue reading Public have their say on clinical trials gateway
Over a half a million members of the British public took part in clinical trials through the NIHR Clinical Trials Research Networks in 2010, a 24% increase on the year before. Those are the Government's figures, not mine. Last week's 'life sciences' announcement included a range of measures to increase patient recruitment to trials. These include … Continue reading In defence of the clinical trial patient: a health research ombudsman?