I was at Camden Town Hall on Monday night with a couple of hundred other citizens. We came together to talk about clinical research and I got a real kick out of it. The occasion was the first ever 'Clinical Research Education Event' held in the UK by the American non-profit organisation, the Centre for... Continue Reading →
Review of public involvement in NIHR published #ppiextramile
Hot off the presses: Almost a year to the day that the Director General Research and Development/Chief Medical Officer commissioned a strategic review of public involvement in the National Institute for Health Research (NIHR), the final report and recommendations have today been published. Simon Denegri, the National Director for Patients and the Public in Research... Continue Reading →
Unofficial update on NIHR’s strategic review of public involvement in research (with thanks to @CLAHRC_NWL)
The review panel conducting the NIHR strategic review of public involvement in research meets this coming Monday. So, I thought you might be interested in a very brief update on where we are, and what I expect to happen next.The deadline for providing views and opinions in response to the review's initial call has now... Continue Reading →
NIHR announces strategic review of public involvement in research #PPIBreakingboundaries
The following official announcement has just been posted on the NIHR website with links to the terms of reference and initial submission document. I say 'initial' because there will be others ways in which you can contribute to the review over the next few months. I am very excited that NIHR has commissioned this exercise... Continue Reading →
In 2013 we want every hospital to be doing this on International Clinical Trials Day…
This from the Dorset Echo about Dorset County Hospital's very simple approach to promoting the importance of taking part in clinical trials on International Clinical Trials Day yesterday. Happy to post other examples if people have any.
Details of The Guardian live Q&A on public engagement in research now available
The Guardian has just put up on its website details of the live Q&A about public engagement in research that it is holding at lunchtime on Thursday 24th May (that's this week). Good line-up for the panel and rather excited about it. The link above also includes details of how to follow the discussion live... Continue Reading →
Thoughts on public involvement, participation and engagement in research…from Denmark
Those of you who follow me on twitter (and you can do so by clicking on the twitter symbol on the blog), will know that, earlier this week, I was tweeting from Copenhagen in Denmark. Myself and Derek Stewart, Associate Director for PPI at NIHR CRN CC, were there to help launch the Danish Health... Continue Reading →
We need more than better chat-up lines to increase participation in research
'Pedestrian freight.' It is a term I had not come across until last week. I believe it is the phrase once used inside train companies to describe you and I, the commuters who throng with fortitude through our stations up and down the land every day. Perhaps it still is, I don't know. Such 'internal' phrases can... Continue Reading →
Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation
At the end of last month the Canadian Government announced that it would be going ahead with clinical trials of a controversial new treatment for MS sufferers called 'liberation therapy.' The decision has gone almost unreported outside Canadian shores and yet for those interested in the relationship between science and its public it is a... Continue Reading →
