Old rules need not apply – Is Apple tearing up the rule book with #ResearchKit?

'Purdah' will very shortly fall over Whitehall as the General Election looms. At the end of March the airspace over government will be closed for six weeks or so. No new flights of Ministerial fancy can take off. Those already in the air may continue on their way but must do so in radio silence. Still, … Continue reading Old rules need not apply – Is Apple tearing up the rule book with #ResearchKit?

New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?

This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here.   Patientslikeme is capturing a lot of attention here in the UK … Continue reading New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?

Current Controlled Trials (CCT) appoints new advisory board

Current Controlled Trials (CCT), which aims 'to increase the availability, and promote the exchange, of information about ongoing randomised controlled trials worldwide,' has appointed a new advisory board to help it in its work.  Other than yours truly, the Board includes Ben Goldacre and Paul Wicks (PatientsLikeMe) among its members, and is drawing on international … Continue reading Current Controlled Trials (CCT) appoints new advisory board

Democratising research

So I thought you might be interested in my thoughts on innovation and public involvement that I shared with the audience at the PatientsParticipate! conference at the British Library on Friday afternoon. The real star of the show thought was patient advocate, Graham Steele, who gave us an absorbing tour of social media and public … Continue reading Democratising research

Avoiding the X-factor in using social media for health research

Some of you may have picked up on this interesting study published by Nature Biotechnology and reported by the Wall Street Journal (headline: 'ALS study shows calue of social media as a research tool'). In what the Wall Street Journal describes as an early example of the role that social media might play in clinical trials, … Continue reading Avoiding the X-factor in using social media for health research