'Purdah' will very shortly fall over Whitehall as the General Election looms. At the end of March the airspace over government will be closed for six weeks or so. No new flights of Ministerial fancy can take off. Those already in the air may continue on their way but must do so in radio silence. Still, … Continue reading Old rules need not apply – Is Apple tearing up the rule book with #ResearchKit?
PatientsLikeMe
UK Clinical Trials Gateway (UKCTG) now shows open trials by location in early Xmas stocking filler for patients
I once wrote an article for a local rag bemoaning the state of the town's railway station. When, two days later, the council announced plans for its complete redevelopment I expressed my shame and guilt to a friend for not having known this. "Simon," he said after a long pause, "it sounds like a simple case … Continue reading UK Clinical Trials Gateway (UKCTG) now shows open trials by location in early Xmas stocking filler for patients
New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?
This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here. Patientslikeme is capturing a lot of attention here in the UK … Continue reading New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?
Current Controlled Trials (CCT) appoints new advisory board
Current Controlled Trials (CCT), which aims 'to increase the availability, and promote the exchange, of information about ongoing randomised controlled trials worldwide,' has appointed a new advisory board to help it in its work. Other than yours truly, the Board includes Ben Goldacre and Paul Wicks (PatientsLikeMe) among its members, and is drawing on international … Continue reading Current Controlled Trials (CCT) appoints new advisory board
Exortic science goes kryptonite, perhaps
Today's headline is taken from the menu for my Indian take away last night which talked of 'exortic sauces.' A spelling mistake it might be but I was rather taken with the idea of my curry sauce exorting me to savour its spices. In a similar fashion do I feel the desire to devour all … Continue reading Exortic science goes kryptonite, perhaps
Democratising research
So I thought you might be interested in my thoughts on innovation and public involvement that I shared with the audience at the PatientsParticipate! conference at the British Library on Friday afternoon. The real star of the show thought was patient advocate, Graham Steele, who gave us an absorbing tour of social media and public … Continue reading Democratising research
Avoiding the X-factor in using social media for health research
Some of you may have picked up on this interesting study published by Nature Biotechnology and reported by the Wall Street Journal (headline: 'ALS study shows calue of social media as a research tool'). In what the Wall Street Journal describes as an early example of the role that social media might play in clinical trials, … Continue reading Avoiding the X-factor in using social media for health research
Simon Denegri's Lay Review 