Some of the leading life sciences organisations in the UK have joined forces to issue a 'statement of aspiration' about the involvement of young people in research saying: 'Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to... Continue Reading →
Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research
Here's a few things that I've been collecting and now seems as good a time as ever to gather them together and share them as one. Researchers may wish to note the following exercise that is running throughout universities and institutions to identify barrier to public engagement. It's a repeat of an exercise done by... Continue Reading →
We must maintain our national impetus and leadership on involving young people in research – comment on new report from @Nuffbioethics
This morning the Nuffield Council on Bioethics published its report: Children and research: ethical issues calling for a change in research culture to enable young people to shape how research is ‘prioritised, designed and reviewed.’ In what amounts to a ‘call to arms’ the report urges funders, clinicians, researchers and ethicists to work together and,... Continue Reading →
Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research
The Nuffield Council on Bioethics have today published their report: 'The collection, linking and use of data in biomedical research and health care: ethical issues' following months of inquiry by an expert working group Chaired by Professor Martin Richards. Here's a copy of the actual report. There is much coverage in the media already including the... Continue Reading →
It’s out! Report of GenR young people in health research event presented to CMO
Yesterday I joined colleagues from the Medicines for Children Research Network (MCRN) to present the report of the Generation R event last year, to the Chief Medical Officer (CMO), Professor Dame Sally Davies. For many people Generation R at the Science Museum was the highlight of 2013. It was designed, organised and delivered by young... Continue Reading →
