A few more ‘£s’ and I’ll be opening my own Wellcome Collection…just keep those surveys coming

If only petrol was as plentiful a resource as public attitudes.  There is no end to the extent to which we can mine what the public thinks about this, or that. Occasionally a survey will hit a rich seam of information and insight.  Then again, so numerous are those who are drilling into the public mindset nowadays, that I... Continue Reading →

National Voices have published an excellent briefing on what the Health and Social Care Act (which received Royal Assent today) means for public involvement in care.' And how we need to actively follow-up with the new NHS structures and bodies established by the legislation to ensure they keep to the letter of the law.  Read... Continue Reading →

Care Homes Research: New toolkit produced to ENRICH lives

Given the concerns over the quality of care home provision in the UK, it is essential that we invest in research that will improve care-giving in these settings for the future. The Dementia and Neurodegenerative Diseases Research Network (DeNDRoN) have just launched a new toolkit (website) entitled 'Enabling Research in Care Homes (ENRICH)' to help promote and... Continue Reading →

Social media and medical research, a story from Oz

I am in international mood today.  From the United States to Australia.  Unfortunately not via Hawaii. This was sent to me this morning and it's basically a report of a paper appearing in the Journal of Internet Medical Research about the viability of using social media in medical research. Interesting snapshot discussion around the pitfalls - i.e.... Continue Reading →

Ill-informed consent: EU meeting lays into clinical trials small print for patients

Image by erjkprunczyk via FlickrDaniel Cressey at Nature has written this report from last week's meeting of the European Forum for Good Clinical Practice which took place in Brussels. The basic thrust of the discussion at the meeting was that information given to patients prior to them signing up for a clinical trial: is often vague, too long,... Continue Reading →

Entitled to a title? Should we better recognise members of the public and patients involved in research?

Various reports today about the Secretary of State for Health, Andrew Lansley MP's, statement in response to a question today in the Commons that he is working to introduce an 'effective compliance regime' to ensure local NHS organisations implement NICE recommendations.  Those with children will no doubt empathise. I'm not sure that as a statement... Continue Reading →

Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us

I see that Cancer Research UK last week put out a press statement about the need for the UK to have strategic vision for medical research. You can find further details on their blog and they also issued a document entitled 'Building the Right Environment for Medical Research.' Thoughtfully the announcement and document have been... Continue Reading →

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