Today's report by the General Medical Council about prescribing errors makes salutary reading. If I have one criticism about it, it is that, as far as I can see, the research they commissioned focused on the views of GPs and their immediate colleagues, less so if at all on the patient perspective. Are we hearing only … Continue reading All this talk of prescribing errors reminds me…..
The National Cancer Research Institute (NCRI) is on a recruitment drive for consumers (patients, carers, relatives and members of the public affected by cancer) to join one of their Clinical Studies Groups (CSGs). These Groups are pivotal in driving new ideas and setting the agenda for cancer research so a patient voice is essential. There are ten … Continue reading Help set the agenda in cancer research….
If only petrol was as plentiful a resource as public attitudes. There is no end to the extent to which we can mine what the public thinks about this, or that. Occasionally a survey will hit a rich seam of information and insight. Then again, so numerous are those who are drilling into the public mindset nowadays, that I … Continue reading A few more ‘£s’ and I’ll be opening my own Wellcome Collection…just keep those surveys coming
Data and its use for society's benefit is one of the areas where we are now seeing rapid developments in both practice and policy. And not just in terms of health care or medical research. I thought I'd link-up a few of the announcements and news items that have happened just this past week to give people … Continue reading A few bytes and bobs of news about medical records, open data etc – the Danish are not just good at making drama
National Voices have published an excellent briefing on what the Health and Social Care Act (which received Royal Assent today) means for public involvement in care.' And how we need to actively follow-up with the new NHS structures and bodies established by the legislation to ensure they keep to the letter of the law. Read … Continue reading Patient involvement in the Health and Social Care Act: National Voices Briefing
Given the concerns over the quality of care home provision in the UK, it is essential that we invest in research that will improve care-giving in these settings for the future. The Dementia and Neurodegenerative Diseases Research Network (DeNDRoN) have just launched a new toolkit (website) entitled 'Enabling Research in Care Homes (ENRICH)' to help promote and … Continue reading Care Homes Research: New toolkit produced to ENRICH lives
I am not sure what made me think about and look for this report: 'N=1: Why people matter in medicines.' Perhaps it was all the talk last week about the Department of Health's 11th report to parliament on the Pharmaceutical Price Regulation Scheme (PPRS) - in essence the way in which drug prices are set … Continue reading N=1: Defining medicines development and use from a patient perspective
I am in international mood today. From the United States to Australia. Unfortunately not via Hawaii. This was sent to me this morning and it's basically a report of a paper appearing in the Journal of Internet Medical Research about the viability of using social media in medical research. Interesting snapshot discussion around the pitfalls - i.e. … Continue reading Social media and medical research, a story from Oz
We don't talk nearly enough about social care research. I sometimes wonder whether we have 'over-medicalised' the health research agenda at times, so that all we shout about are new medicines and treatments - me included. It is a trend that seems counter to the needs of our society and also the changes in the … Continue reading Social care research opportunities
Image by erjkprunczyk via FlickrDaniel Cressey at Nature has written this report from last week's meeting of the European Forum for Good Clinical Practice which took place in Brussels. The basic thrust of the discussion at the meeting was that information given to patients prior to them signing up for a clinical trial: is often vague, too long, … Continue reading Ill-informed consent: EU meeting lays into clinical trials small print for patients
This article in The Guardian about how the NHS has much to learn from the retail sector in the way it designs and uses patient questionnaires has prompted a lot of angry comment. To be fair, it makes one or two good points. These include the fact that we are too slow in incorporating patient … Continue reading That article about patient questionnaires: the NHS ain’t no Argos
Various reports today about the Secretary of State for Health, Andrew Lansley MP's, statement in response to a question today in the Commons that he is working to introduce an 'effective compliance regime' to ensure local NHS organisations implement NICE recommendations. Those with children will no doubt empathise. I'm not sure that as a statement … Continue reading Entitled to a title? Should we better recognise members of the public and patients involved in research?
I see that Cancer Research UK last week put out a press statement about the need for the UK to have strategic vision for medical research. You can find further details on their blog and they also issued a document entitled 'Building the Right Environment for Medical Research.' Thoughtfully the announcement and document have been … Continue reading Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us