I didn't think so. Do you get those nagging calls about PPI? It's usually early evening. Sometimes it is a recorded voice message. Sometimes a text. Very occasionally it is a real person from the unreal environment of a call centre. Unfortunately they are all contacting me about that other PPI - yes, Payment Protection … Continue reading Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve
It's one of the hardest things they will have to do. It is physically and mentally draining. For many it will feel a lonely place. The atmosphere will be unlike anything they have ever experienced before. Some will feel as if they are in a state of suspended animation. Others will feel as if they have leapt off a cliff … Continue reading From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week
Yes, that is a long headline is it not? PharmaTimes and others cover a paper in PloS Medicine authored by a number of medicines regulators including the European Medicines Agency (EMA), calling for openness in raw trial data. The three pronged approach they suggest looks like a good basis for discussion. It would be interesting … Continue reading Regulators push openness agenda on raw trial data…and EUPATI issues call for examples of educational materials on medicines development
Thought people might be interested to know that the European Patients' Academy on Therapeutic Innovation (otherwise known as EUPATI) is holding its launch meeting on 27th March 2012 in Copenhagen. Details and programme here. I wrote about the EUPATI initiative on my blog in February if you want to find out more. Also, it would … Continue reading EUPATI if you want too….
The EU economy might be splintering apart. But, meanwhile, a number of patient/public/private organisations are 'euro-zoning' in on the task of providing better information for patients on medicines development. The new initiative - which was launched on 1st February - is called the European Patients Academy on Therapeutic Innovation or EUPATI for short. Thank goodness they did … Continue reading EU initiative to boost information for patients on medicines development