Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research

The Nuffield Council on Bioethics have today published their report: 'The collection, linking and use of data in biomedical research and health care: ethical issues' following months of inquiry by an expert working group Chaired by Professor Martin Richards.  Here's a copy of the actual report. There is much coverage in the media already including the … Continue reading Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research

Patient consent and research

A colleague in the office sent me a link this week to a piece by Professor Anthony Mathur on the BBC Online's 'Scrubbing Up' pages in which he argues that if people want treatment for a heart problem, they should be obliged to take part in the research.  The very same day I got home to a … Continue reading Patient consent and research