When I was growing up I used to help my Dad do DIY around the house. Our perennial companion was a thick, hard-bound manual with step-by-step guides on how to do anything and everything. No job was too big or too small for it. From replacing a chimney stack to changing a plug. Dad passed … Continue reading The devil’s in the manual – health research regulation and public involvement @HRA_Latest
research regulation
It’s NIHR Friday: NHS Trust research activity stats published
You didn't think I'd forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this week published its annual performance tables for research activity in each NHS Trust in England for 2012/13. You can find the figures for your local … Continue reading It’s NIHR Friday: NHS Trust research activity stats published
A bit of a public involvement mash-up including that idea for an NHS Civil Society Assembly
So here's my unsubstantiated personal theory. It is that one of the root causes of the problems besetting today's NHS' is our failure to pay proper heed to the growing crisis in accountability and responsibility that has been a feature of our increasingly complex health system over the last seventy years. From almost the day … Continue reading A bit of a public involvement mash-up including that idea for an NHS Civil Society Assembly
mICRA, PROSPERO, Beddington and Bell
Announcements are like buses. There are none for what seem like days and then several come all at once. My job is to make sure you get on the right one... NIHR has several announcements out today which AMRC and its members have had some involvement or interest in. The first is the launch of the new … Continue reading mICRA, PROSPERO, Beddington and Bell
Health and social care reforms on trial
What better starting point for today's blog than the comments of two leading clinicians speaking about the importance of clinical trials to patient outcomes. First, Dr Duncan Wheatley, a Clinical Oncologist and Lead for Research in the South West Peninsula, who is quoted in a BBC Cornwall story today about medical research at the Royal … Continue reading Health and social care reforms on trial
Rawlins Review: Academy lays down law on health research regulation
Over the weekend Professor Colin Blakemore said he hoped the Academy of Medical Sciences would come up with radical proposals to end the regulatory mess that holds up UK health research such as clinical trials. I am not sure whether he will feel today's report by the Academy lives up to that aspiration, but I do … Continue reading Rawlins Review: Academy lays down law on health research regulation
Regulating research – Blakemore/Deer comment pieces + AMRC background
Ahead of next week's Academy of Medical Sciences (AMS) much anticipated report on medical research regulation I see The Times and Sunday Times (both paywall) have published pieces this weekend by scientist Professor Colin Blakemore and journalist Brian Deer respectively, offering different perspectives on the issue of regulation. If you are looking for further background on … Continue reading Regulating research – Blakemore/Deer comment pieces + AMRC background
What do patients want from health research regulation?
In a blog 'exclusive' - albeit more by technical chance than design - I am today sharing with you the independent report of the AMRC/INVOLVE patient workshop on health research regulation that took part in early November. We were invited to undertake this important piece of work by the Academy of Medical Sciences (AMS) as … Continue reading What do patients want from health research regulation?
Earl Howe's Speech at the AMRC AGM
I thought you may be interested in this extract from the Health Minister, Earl Howe's, speech to out AGM on Wednesday: It also gives me pleasure to note [that] AMRC member expenditure on research having exceeded £1 billion for the year for the first time. Given the economic circumstances, I think this is something about which … Continue reading Earl Howe's Speech at the AMRC AGM
'A nation of General Practitioners' and other bits of philosophising
The news earlier this week that the National Institute of Clinicial and Health Excellence (NICE) is to lose its powers for deciding which drugs should be made available on the NHS (to be replaced by a new system based around GP commissioning) brought an alternative version of Adam Smith's remarks about shopkeepers to mind: "To found a … Continue reading 'A nation of General Practitioners' and other bits of philosophising
Today in The Times: AMRC charities voice concern over changing climate for UK science
Update at 4.30pm: Both The Guardian and The Times have been running reports this afternoon about an email from the head of Universities UK, Steve Smith, to the heads of higher eductaion institutions which has been leaked to the BBC. They are reporting that the email warns of a £3bn cut in university teaching budgets … Continue reading Today in The Times: AMRC charities voice concern over changing climate for UK science
AMRC Responds to NHS White Paper 'Equity and Excellence: Liberating the NHS'
A quick post to say that we have today posted our comments on the NHS White Paper on our website. Our response is the first-listed on the consultations page for 2010 here. If you want to get some idea of the Department of Health perspective on the issues we raise you might like to read … Continue reading AMRC Responds to NHS White Paper 'Equity and Excellence: Liberating the NHS'
Science at the Conservative Party Conference – notes from a large fringe
Stumbling half-asleep across my hotel room this morning I overheard a spokesman from the Birmingham Symphony Orchestra on the TV saying that every £1 invested in arts in the city generated a further £29 in economic activity. Or something along those lines. As Orwellian visions filled my mind of a day to come where every … Continue reading Science at the Conservative Party Conference – notes from a large fringe
Science at the Conservative Party Conference – avoiding the herd mentality
I read in the Birmingham local press that about 14,000 people are expected at the Conservative Party Conference. It certainly seems busier than the preceding two, even on a Sunday evening. Each conference has its own feel but common to them all is the herd of grey-suited buffalo (including myself I suppose) that migrates from one … Continue reading Science at the Conservative Party Conference – avoiding the herd mentality
Science at the Conservative Party Conference
Two down, one to go. Here's science related 'matter' at the Conservative Party Conference which starts in Birmingham tomorrow. Birmingham University was of course the venue for the Science Minister, David Willett's, first speech after taking office. I am looking forward to being one of the hosts when he joins us for a roundtable breakfast … Continue reading Science at the Conservative Party Conference
Coming down to earth – regulators, dementia taxes, collaboration and new generation politics
I think it was Simon Carr in the Independent who said that Ed Milliband opened his arms at the beginning of his speech as if welcoming the assembled earthlings to his world. I certainly feel as though I have come back down to earth today. An early train back to London from Manchester to a … Continue reading Coming down to earth – regulators, dementia taxes, collaboration and new generation politics
Science at the Labour Party Conference – a Miller's tale
Rumour has it that there is an outbreak of tonsilitis in the north-west at the moment...here's hoping Ed Milliband is being kept in isolation until his leader's speech this afternoon. One thing I forgot to mention from last night's meeting was David Lammy's comment that the coalition government has yet to put together a convincing narrative for … Continue reading Science at the Labour Party Conference – a Miller's tale
Science at Labour Party Conference – Vital Signs
First, a general observation. Less than one day here and I have met four 'Eds' already - more than in the previous ten years travelling the breadth of the UK. Strange that. But perhaps when you are faced by David Willetts you need as many 'Eds' as you can get. I came expecting a muted, … Continue reading Science at Labour Party Conference – Vital Signs
Science at the Lib Dem conference – patients hold their nerve for research
'Hold your nerve' was the message to his party from Nick Clegg yesterday. Well, this evening patients and their carers held their nerve by standing in front of conference delegates to tell their personal stories of fighting disease and the way research has helped, or could help, them. In fact if you happen to be … Continue reading Science at the Lib Dem conference – patients hold their nerve for research
Science at the Lib Dem Conference – Life Sciences Breakfast
Policy-making is not immune to trends. The latest seems to be the 'roundtable' meeting. I blame King Arthur myself (well, they say that trends do come round). But I bet he didn't meet his knights at 9 or 8am. This morning AMRC, the BioIndustry Association, Association of British Healthcare Industries and Association of the British … Continue reading Science at the Lib Dem Conference – Life Sciences Breakfast
Simon Denegri's Lay Review 