Patients have long been working their way upstream in drug research. At last they are up the creek with a paddle. #publicinvolvement #patient-centricity

Patients and carers will tell you that all that is good or bad about health research can usually be traced to its source. That place where the idea is first formed by scientists. Eureka moment it might be, they will say, but having patients and carers involved from the beginning can save embarrassment for all … Continue reading Patients have long been working their way upstream in drug research. At last they are up the creek with a paddle. #publicinvolvement #patient-centricity

‘Scroll down’ for clinical trials

To begin with, here's more on that Pfizer story about use of mobile phone technology etc in clinical trials. It seems to have piqued an interest among many of you anyway. Also on the subject of clinical trials, I was rather perplexed by this story running out of the NHS Confederation this morning. I'm delighted … Continue reading ‘Scroll down’ for clinical trials

mICRA, PROSPERO, Beddington and Bell

Announcements are like buses.  There are none for what seem like days and then several come all at once.  My job is to make sure you get on the right one... NIHR has several announcements out today which AMRC and its members have had some involvement or interest in.  The first is the launch of the new … Continue reading mICRA, PROSPERO, Beddington and Bell

UKCMRI Task Gets Bigger

So the UKCMRI partners were in front of the House of Commons Science and Technology Committee yesterday as were representatives of the local community.  Meanwhile the Science Minister, David Willetts, announced that the Government had agreed the business plan for the new centre as put forward by the Medical Research Council (MRC).   A good day all … Continue reading UKCMRI Task Gets Bigger

Second Reading of the Health and Social Care Bill: An open letter to MPs

Dear Member of Parliament, This afternoon the Health and Social Care Bill will recieve its Second Reading in the House of Commons.  The legislation sets out a far-reaching programme for reforming the NHS and the provision of patient care.  The Association of Medical Research Charities (AMRC) and its 127 member charities believe that high quality … Continue reading Second Reading of the Health and Social Care Bill: An open letter to MPs

Getting touchy over the information revolution

Over the holidays I caught a BBC Radio 4 item about the days of the touch typist.  It was one of those gems of broadcasting which looked through a narrow lens to tell the listener much about how the world has changed.  It also brought back many memories of my time as a messenger at the old … Continue reading Getting touchy over the information revolution

Rawlins Review: Academy lays down law on health research regulation

Over the weekend Professor Colin Blakemore said he hoped the Academy of Medical Sciences would come up with radical proposals to end the regulatory mess that holds up UK health research such as clinical trials. I am not sure whether he will feel today's report by the Academy lives up to that aspiration, but I do … Continue reading Rawlins Review: Academy lays down law on health research regulation

Regulating research – Blakemore/Deer comment pieces + AMRC background

Ahead of next week's Academy of Medical Sciences (AMS) much anticipated report on medical research regulation I see  The Times and Sunday Times (both paywall) have published pieces this weekend by scientist Professor Colin Blakemore and journalist Brian Deer respectively, offering different perspectives on the issue of regulation. If you are looking for further background on … Continue reading Regulating research – Blakemore/Deer comment pieces + AMRC background

More NHS patients participating in UK clinical trials than ever before

A piece of good news with which to begin the New Year.  PharmaTimes is reporting that the number of patients participating in clinical trials jumped by 67% last year to over half a million (compared to over 300,000 in 2009). The new CEO of the National Institute for Health Research Clinical Research Network Co-ordinating Centre (NIHR … Continue reading More NHS patients participating in UK clinical trials than ever before

An evening of industry – how the pharma business model is changing

So it's 10pm and I'm busy here putting the final touches to the AMRC/INVOLVE report of the workshop we held in November which drew together patient views on health research regulation.  This was at the invitation of the Academy of Medical Sciences as part of their review of regulation and governance but - and all … Continue reading An evening of industry – how the pharma business model is changing

When good medicine is the casualty of hype and ignorance

I have just returned from the Financial Times' offices, where I was the guest for their regular science podcast hosted by Clive Cookson and Andrew Jack (it will appear here later today).  The theme of the discussion was 'Selling Sickness.'  Andrew was reporting on a recent conference of the same name that took place last month in Holland.  … Continue reading When good medicine is the casualty of hype and ignorance