Some of you may have noticed some twitter traffic over the weekend about participation in clinical trials being advertised as job opportunities on Universal Jobmatch. Thanks to @celticchickadee for alerting me to this by the way. Anyway, colleagues at NIHR have followed up, the posting has been removed and this is the official line from … Continue reading Universal Jobmatch takes prompt action over clinical trial ‘jobs’ posting
medical research
Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
Not for the first time I was awake at 3am this morning. Cup of tea in hand, watching American football. It's amazing how those players keep the ball when so many other players are piling on top of them. Rarely do you see the thing break free. They must practice for hours.... The House of Commons … Continue reading Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
Is this seat taken? Why patients always lose out at musical chairs?
I have been on some crowded trains lately. The sort which have their own micro-climate bubbling inside. On more than one occasion passengers have chosen to pile high their belongings on the empty seat beside them. Perhaps they think if they put enough stuff on a seat it will look like another person? Anyway, so … Continue reading Is this seat taken? Why patients always lose out at musical chairs?
Genomics England is inviting patients and the public to a town hall event: apply here
Passing this invite on from Sir John Chisholm, Chair of Genomics England, for their event on 3rd Oct. Email address to attend included below along with website address. Hello, I am writing on behalf of Genomics England to invite you to our first Stakeholder Event on Thursday 3rd October 2013. The venue is as follows: … Continue reading Genomics England is inviting patients and the public to a town hall event: apply here
Generation R event: young people in research storm the barricades of science
What was it that the author, William Golding, said when asked if he went to church? 'No I don't, and I don't think God does either.' I feel the same about medical research conferences. They often seem to be places where people go to worship the science rather than what it can do for people. … Continue reading Generation R event: young people in research storm the barricades of science
Patient partners wanted for Health Research Authority (HRA) workshops in London, Manchester, Newcastle
If you have heard me speak at an event or conference you may have heard me talk about the need for us to see the public as partners in regulating modern health systems. Yesterday I was chairing the small steering group that has been advising the Health Research Authority (HRA) on the development of its … Continue reading Patient partners wanted for Health Research Authority (HRA) workshops in London, Manchester, Newcastle
Survey: Cancer patients and research – the signage is there but not the opportunity to take part
You know how the story goes. Cancer is way ahead of other conditions when it comes to patients having the opportunity to participate in clinical research. But there's still lots of room for improvement. Today NHS England has announced the results of the annual National Cancer Patient Experience Survey. Almost 70,000 patients took part in … Continue reading Survey: Cancer patients and research – the signage is there but not the opportunity to take part
Charities should be often seen and loudly heard.
Respected Times columnist, Libby Purves, took aim last week at the campaigning work of charities (see article (pay-wall)). As did Chris Snowdon, a fellow at the Institute of Economic Affairs (IEA), who wrote this piece in CITYA.M. Both appear to share a romanticised view of charity in which charities would be better 'seen and not heard.' And through a soft-focus lens at … Continue reading Charities should be often seen and loudly heard.
The language of Francis, Keogh and Berwick on the NHS, in pictures.
What is the language of our health service today? What words and phrases do we use about the NHS and what do they say about us? More importantly, what do they say about where we want to get too? Well, one place to start perhaps is the text of the three reviews of the NHS recently completed by … Continue reading The language of Francis, Keogh and Berwick on the NHS, in pictures.
New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
The Department of Health this morning announced the successful NIHR Collaborations for Leadership in Applied Health Research and Care (CLSHRCs). The formal press release can be found here. Thirteen CLAHRCs have been awarded over £120M in total following an open competition earlier this year. The details of the latter can be found here. Further details … Continue reading New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
Lock up your charity CEO the Daily Telegraph is coming
The best advice I can give charity Boards of Trustees today is: lock up your chief executive because the Daily Telegraph is after them. The newspaper known for its successful probing of MP pay and expenses is now taking aim at charity CEOs. Specifically it has gone for the heads of the charities that make … Continue reading Lock up your charity CEO the Daily Telegraph is coming
Holby City leaves transplant facts behind in search of medical drama, but why?
Nine in ten of us watch the TV at least once a week. The living room is the place where we most like to sit in front of 'the box.' And the majority of the programmes we view constitute live television. So found OFCOM in its latest research of people's media habits published two weeks … Continue reading Holby City leaves transplant facts behind in search of medical drama, but why?
An unleaked memo on sorry pharma and the silly season
Or should that be silly pharma...I don't know. Yes, our colleagues from pharma have stolen the march on everyone else and got the silly season off to a grand old start. I am referring, of course, to the leaked memo from the European and American pharma trade associations dutifully covered by Ian Semple at The … Continue reading An unleaked memo on sorry pharma and the silly season
WHO calls for investment to turn public involvement from a paper tiger into a lion’s roar
There are two reasons to read the World Health Organisation's (WHO) report on medicines priorities published earlier this week: http://www.who.int/mediacentre/news/releases/2013/ageing_priority_medicines_20130716/en/ The first is for its call on pharmaceutical companies and others to reflect the needs of an ageing population in their R&D investment. It rehearses many of the concerns that are being articulated left, right … Continue reading WHO calls for investment to turn public involvement from a paper tiger into a lion’s roar
It’s a personal thing: You say stratified medicine and I say…
The UK Academy of Medical Sciences (AMS) does not do hyperbole. This is a good thing considering the histrionics that usually accompanies discussion about stratified medicine. AMS brought out its long-awaited report on stratified medicine on Friday entitled 'Realising the potential of stratified medicine.' It's straight-laced approach to the subject matter means it failed to … Continue reading It’s a personal thing: You say stratified medicine and I say…
Leadership, and a strategy transplant from NHSBT would do the patient data debate no harm
Today NHS Blood and Transplant (NHSBT) has called for a radical change in public attitudes and behaviours towards organ donation.The public have been asked to respond to NHSBT's new strategy. This asks people to consider some tough questions such as whether registered organ donors should go to the front of the queue for organ donation ahead of … Continue reading Leadership, and a strategy transplant from NHSBT would do the patient data debate no harm
250 words on Genomics England
So this feels to me as though common sense has been snatched from the jaws of defeat at the feet of academia. The initial announcement of a 'genome mapping initiative' by the Prime Minister in December was followed by not very convincing noises about the shape of things to come. Indeed, I fired off a … Continue reading 250 words on Genomics England
Blog: public attitudes to science need more than a good fracking
It is not open yet. Not a jot of science has taken place there. But the tweet from NHS England yesterday and accompanying article heralded 'the Crick' for 'pushing the frontiers of medical science.' * At this rate I think we have every right to be disappointed if the 'Crick' has not cured cancer, heart … Continue reading Blog: public attitudes to science need more than a good fracking
Blog: We have the public to thank for this week’s well-informed decisions in health research
We have had two pieces of good news about health research of patient benefit this week. First, the National Institute for Health and Care Excellence (NICE) issued new guidance saying that tamoxifen or raloxifene taken daily for five years can cut breast cancer risk by 40%. This means women at risk of developing breast cancer have … Continue reading Blog: We have the public to thank for this week’s well-informed decisions in health research
@SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
I'm always very chuffed when people ask for a copy of my presentations after a talk. Usually I am quite good at emailing them to people or asking the organisers to send them round. Anyway, I have done a lot of meetings lately and thought I would post here copies of my slides from the … Continue reading @SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
simondenegri.com 