Hot off the presses: Almost a year to the day that the Director General Research and Development/Chief Medical Officer commissioned a strategic review of public involvement in the National Institute for Health Research (NIHR), the final report and recommendations have today been published. Simon Denegri, the National Director for Patients and the Public in Research … Continue reading Review of public involvement in NIHR published #ppiextramile
What should we make of the latest figures from INVOLVE and the Health Research Authority (HRA) showing which funders are best at public involvement in research? In a re-run of an joint-exercise first done in 2010, INVOLVE and the HRA looked at the public involvement component of over 1100 research applications that went before research ethics … Continue reading Who are the good, the bad and the ugly at involving the public in medical research? New comparative figures for Government, charities and industry
There are two ways to get to Dublin City Centre from the airport by taxi. You can either join the traffic that wends its way slowly overground. Or you can take the Dublin Port Tunnel which gets you there in no time at all. On behalf of all harried travellers, can I thank the person … Continue reading Ireland gets to grips with public involvement in research
I notice that there has been a fair bit of news generated today by the charity, Autistica, who have published a study showing that autism costs the UK £32 billion per year in terms of treatment, lost earnings etc. The study was conducted by researchers at the London School of Economics (LSE) and follows one … Continue reading Why do charities play the numbers game when talking ‘burden of illness’ and medical research?
What is, I wonder, the equivalent of Noel Coward's lyric 'only mad dogs and Englishmen go out in the midday sun,' which might encapsulate the phenomenon that is the Virgin Money London Marathon? This morning tens of thousands of runners will set out from Greenwich Park as they do every year with high hopes of finishing two, three, four … Continue reading The medical marathon; a piece to mark the #LondonMarathon2014
Over the last few months, I have been noting down charity advertising copy as I go about London. Here are ten. Notice any trends? Diagnosed with blood cancer, Chloe only has one hope...YOU. Text HOPE.... Anthony Nolan Trust 2013 Elliot is deafblind. He can't tell it's Christmas. Text TOY to....Sense Help us beat cancer sooner … Continue reading Fight the good fight: medical research charity advertising slogans
Not for the first time I was awake at 3am this morning. Cup of tea in hand, watching American football. It's amazing how those players keep the ball when so many other players are piling on top of them. Rarely do you see the thing break free. They must practice for hours.... The House of Commons … Continue reading Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
This evening I have been reading a fascinating report about women with ovarian cancer and their access to clinical trials. Last week, Target Ovarian Cancer published the results of their 2012 Pathfinder Study. It is an excellent piece of work. What I like about it is that it digs around issues to do with choice … Continue reading Charity right on Target with patient insights on clinical trials: where are the others?
This is an extract from a talk I gave on Monday to the Faculty of Medical Sciences at the University of Newcastle. I tried to answer the following question: The life sciences are seen as fundamental to the nation’s health and to economic growth. But what is the public’s role in making this happen? The … Continue reading The life sciences, the public and the growth agenda…its not just about bums on seats
Divvying up the costs of conducting research in the NHS funded by medical research charities is an intricate business. Who pays for that research nurse, their time in administering the extra treatment required in a clinical trial, the procedures and equipment needed as part of its conduct, the oversight and governance needed to ensure that things are done … Continue reading DH and charities reach acoRD over medical research costs
I do not normally devote the front page of my blog to the day job but on this occasion I hope you will agree that the news merits it. Today Nature Reviews Cancer have published online in their October 2011 issue a perspective piece entitled 'Rethinking ovarian cancer.' The article, co-authored by the leading international scientists in … Continue reading Ovarian cancer research: a new perspective and a great example of the impact of medical research charities on science