James Lind Alliance Priority Setting Partnerships (JLA PSPs) are arguably one of the most successful initiatives in public involvement in research in the UK over the last 10 years. They are the 'go to' methodology for defining patient, carer and health professional priorities in research; particularly for charities and patient groups who see them as … Continue reading James Lind Alliance PSPs are 50+ not out and I am glad they are batting for patients #prioritysettinginresearch @LindAlliance @OfficialNIHR @NIHRINVOLVE
James Lind Alliance
Let’s follow #DryJanuary with a concerted effort to research patient priorities in alcohol-related liver disease @LindAlliance
This blog by me was first published on the National Institute for Health Research (NIHR) prior to Christmas to coincide with the publication of the James Lind Alliance Priority Setting Partnership on alcohol-related liver disease. But yesterday's report by Public Health Wales showing that thousands of people who die from alcohol related problems had no … Continue reading Let’s follow #DryJanuary with a concerted effort to research patient priorities in alcohol-related liver disease @LindAlliance
NIHR revamps another route for patients, carers and the public to submit their ideas for research
Making sure that research funded by the NIHR, charities and industry reflects the needs and priorities of patients, carers and the public is one of the most important agendas in public involvement. It has been a focus for much activity over the years with the outstanding James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) being the … Continue reading NIHR revamps another route for patients, carers and the public to submit their ideas for research
What next in identifying patient priorities for health research? #JLAevaluation
I spent yesterday morning at an excellent event looking at the James Lind Alliance Priority Setting Partnerships (JLA PSPs for short!). #JLAevaluation Started in 2004, JLA PSPs have become a recognised and highly respected method for identifying shared priorities in health research among patients, carers and clinicians. That they have is a testament to its founders but also the excellent JLA … Continue reading What next in identifying patient priorities for health research? #JLAevaluation
Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research
Here's a few things that I've been collecting and now seems as good a time as ever to gather them together and share them as one. Researchers may wish to note the following exercise that is running throughout universities and institutions to identify barrier to public engagement. It's a repeat of an exercise done by … Continue reading Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research
NIHR turns to public for help with defining research priorities in alcohol-related liver disease
This content is straight from the NIHR but I feel so deeply about this issue that I wanted to use my blog to highlight what is clearly a very important initiative. But here's a factoid about Priority-Setting Partnerships that's worth sharing as a presage to the piece: 29 PSPs have now been completed since the beginning … Continue reading NIHR turns to public for help with defining research priorities in alcohol-related liver disease
NIHR looks to go PROACTIVE with plan for research participation and engagement
Why shouldn't you and I be able to take part in appropriate and relevant research as part of our NHS care and treatment? Why shouldn't we be able to expect to have that discussion with our doctor as part of our diagnosis and care? Why shouldn't we be able to access research evidence so we … Continue reading NIHR looks to go PROACTIVE with plan for research participation and engagement
Patients hack medical research in planned attack
Hacking in this context is what we call 'bringing people with different views and skills together to work on problems.' [Sorry to disappoint the headline chasers but I hope you'll stay with me] And 'hackathons' - events where such hacking activity can take place - are increasingly common across the health arena as a means of solving problems. In … Continue reading Patients hack medical research in planned attack
Small research charity demonstrates power of asking questions
Today, we travel to the Lake District.... The British Tinnitus Association (BTA) is a small medical research charity which I had intermittent contact with while Chief Executive at the Association of Medical Research Charities (AMRC). It has a proud history of supporting research. Not unusually for charities of its size and type, while it represents … Continue reading Small research charity demonstrates power of asking questions
Supertrams, supertramp and day-glo…plus JLA (no, not JLS!) go to number one
I don't know about you but I've taken to asking for a 'double-dip' lottery ticket since yesterday's Autumn Statement. Never has so much hinged on four new trams in Sheffield, who would have thought? But as soft rock band Supertramp famously said in "Put On Your Old Brown Shoes": ''We've got to get away, get … Continue reading Supertrams, supertramp and day-glo…plus JLA (no, not JLS!) go to number one
A non-commercial break…and FP8
A brief interlude in all things politics gives me the opportunity to relay some events of the last few weeks. First, a long overdue welcome to our three new member charities: Epilepsy Action; Furlong Research Charitable Foundation and; Pancreatric Cancer UK. That takes our membership up to 124 charities. Monday night saw me attend the … Continue reading A non-commercial break…and FP8
Simon Denegri's Lay Review 