I know from personal experience that visiting a relative in an Intensive Care Unit (ICU) can be harrowing. For children and young adults it must be particularly bewildering and frightening. But I am pleased to say that help is at hand. ICUsteps is great charity run by ex-patients, relatives and health professionals to support people … Continue reading Wonderful new book for children with relatives in intensive care @ICUsteps Please RT.
Some of the leading life sciences organisations in the UK have joined forces to issue a 'statement of aspiration' about the involvement of young people in research saying: 'Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to … Continue reading Blog news: Life sciences giants join forces to promote young people’s involvement in health research
This morning the Nuffield Council on Bioethics published its report: Children and research: ethical issues calling for a change in research culture to enable young people to shape how research is ‘prioritised, designed and reviewed.’ In what amounts to a ‘call to arms’ the report urges funders, clinicians, researchers and ethicists to work together and, … Continue reading We must maintain our national impetus and leadership on involving young people in research – comment on new report from @Nuffbioethics