The Medical Research Council (MRC) has published a refreshed communications and engagement strategy. There is a section on public involvement on P12 of the document which is the fullest narrative I have seen of their corporate intentions around this aspect of working in partnership with the public. It is a good document and important to... Continue Reading →
Just thought it would be good to put a local slant on a national story - the establishment, as from today, of the new NIHR School for Public Health Research This from Plymouth (Peninsular Medical School), one of the eight centres around the country involved. They must have very good PR people down there because they... Continue Reading →
There was an online discussion hosted by The Guardian this morning about commercially sponsored clinical trials in the NHS. You can get the jist here.
National Voices have published an excellent briefing on what the Health and Social Care Act (which received Royal Assent today) means for public involvement in care.' And how we need to actively follow-up with the new NHS structures and bodies established by the legislation to ensure they keep to the letter of the law. Read... Continue Reading →
This article (entitled 'The Rise of the Patient Leader') written by David Gilbert at InHealth Associates appeared in HSJ earlier this year. I didn't send round a link at the time because of HSJ's paywall. But now you can find it on InHealth Associates' website free of charge...which seems a very good excuse to send it round and... Continue Reading →
Thought people might be interested to know that the European Patients' Academy on Therapeutic Innovation (otherwise known as EUPATI) is holding its launch meeting on 27th March 2012 in Copenhagen. Details and programme here. I wrote about the EUPATI initiative on my blog in February if you want to find out more. Also, it would... Continue Reading →
Just had an email from Rare Disease UK (RDUK) saying they are setting-up four consultation days for patient groups to discuss the rare diseases consultation paper put out by the four health departments across the UK a few weeks ago. Here are the dates: Wales - Cardiff – 1st May – location TBC /England -... Continue Reading →
We are inextricably bound to meetings and conferences as the way to do things aren't we? How dull, how sad. To which point I was entertained by this fab idea for an 'unconference' being run by the Committe for the Public Understanding of Science (COPUS) in the States. The prospect of potential meeting anarchy brings... Continue Reading →
HRA is established today as a Special Health Authority. I believe further details will be published a bit later and I'll post them here accordingly. But you might want to keep checking the website of the National Research Ethics Service (NRES). 'Anon,' as the bard used to say.
Here's hoping this works. So, (sorry John Humphries et al) rather than send you all off somewhere else, here is the pdf of the whole patient information leaflet 'Your health records saves lives' which I wrote about yesterday. Click here: PHR LIFT England online As I say, please pass it on...for me. And you can... Continue Reading →
Given my post yesterday I am delighted to congratulate Tees, Esk and Wear Valleys NHS Foundation Trust on winning the Health Service Journal's (HSJ) first ever research culture award last night. The full list of winners and highly commendeds is as follows: Winner: Tees, Esk and Wear Valleys NHS Foundation Trust Highly Commended: Portsmouth Hospitals... Continue Reading →
...remiss of me to not post the Patients Participate Report launched by AMRC, British Library and others a few weeks ago. Clicking on the cover below will take you to the AMRC web page where you can download the report.
I realised only now that the link in my blog last night proposing a Chief Listening Officer for UK Science had no link to a proper definition of what one is. Serves me right for trusting the WordPress auto-link function. Anyway, here is a rather good article about the role of a Chief Listening Officer... Continue Reading →
A quick aside to alert you to the fact that the National Institute for Health Research (NIHR) has published its annual report for 10/11.
Good to see a broad coalition of UK organisations including AMRC issue this joint statement today urging for the ongoing revision of EU Clinical Trials Directive to culminate in less bureaucracy for funders and others when setting up and running trials. No one would argue with the need to put patient safety first but I... Continue Reading →
Today's MS stem cell story is running on the front page of today's hard copy edition of the London Evening Standard because of the strong London connection. So I thought I'd post it here. Well done to colleagues at the MS Society who have helped fund this work. http://www.thisislondon.co.uk/standard/article-23974245-new-stem-cell-treatment-hope-for-ms-sufferers.do
Business Monitor International (BMI) have issued their latest report on the outlook for the UK Pharma and Healthcare sector. My reading of it would be that although th UK has some core strengths some significant uncertainties remain. They note the continuing difficulties over clinical trial regulation as a hurdle to future growth and say the... Continue Reading →
My colleague, Katherine Mathieson, at the British Science Association emailed me this morning and reminded me of this excellent story about the young woman who has won the first ever Google online science competition with her research into ovarian cancer. Welldone Shree Bose from the US.
Richard Smith - BMJ - has blogged about this rather good paper on Participatory Medicine by Michael Millenson which appeared in the Journal of Participatory Medicine last month. Read and enjoy.
From the ResearchAmerica blog a new report on the contribution of pharma to the US economy.