What have Academic Health Science Networks (AHSNs) ever done for you and I? #AHSNs

I have written a fair bit about Academic Health Sciences Networks (AHSNs) in the past. Not always favourably I’ll admit. But that was then and this is now. I am pleased to report that, as of May, the 15 AHSN have been re-licensed/re-designated/re-booted (select as necessary) for another five years with NHS Chief Executive, Simon Stevens, … Continue reading What have Academic Health Science Networks (AHSNs) ever done for you and I? #AHSNs

If AHSNs are failing can we at last have a democratic space for innovation in the NHS?

Today I have been in Bolton to kick-off the NHS North West R&D Conference. 170 delegates – including patients and the public – getting together over two days to talk research. A great event and I hope they feel I got them off to a good start with my talk. It occurred to me afterwards … Continue reading If AHSNs are failing can we at last have a democratic space for innovation in the NHS?

Building ‘research active’ communities for a healthier population: a clear mission for CLAHRCs, AHSNs, LCRNs

I am in Alberta, Canada.  I have been invited over to share the UK’s experiences in developing public involvement in research.  As ever, it is the similarities and not the differences between our two experiences that strike you on a visit like this. More about those another time. My good friend, Derek Stewart, yesterday wrote an excellent blog with his … Continue reading Building ‘research active’ communities for a healthier population: a clear mission for CLAHRCs, AHSNs, LCRNs

An Open Letter to the 15 Chairs of the AHSNs

Dear Colleagues, I understand that you have just received your letters from the Department of Health confirming your designation as an Academic Health Science Network (AHSNs) subject, no doubt, to a few refinements. Congratulations. Me and my colleagues from across the world of public involvement are looking forward to working with you to get innovations … Continue reading An Open Letter to the 15 Chairs of the AHSNs

New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI

Top initiatives today….. Care to learn to care better.   The NIHR Dementia & Neurodegenerative Diseases Research Network (DeNDRoN) today launched their new ‘Patients in Research’ infokit.  It’s an excellent free resource showcasing work from across health and social care, stories, ideas, tips and tools.  This great piece of kit is all part of a larger effort … Continue reading New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI

AHSNs, CLAHRCs need to do a ‘Keanu’ and rearrange matter(s) in the public interest

So there I was, reclining on my sofa, recovering from the worst chest infection known to mankind. (Note deliberate reference to the male species there.) And I had decided to use my temporary ill-health to fill some gaps in my movie knowledge. Watching the MATRIX and MATRIX Reloaded it occurred to me that, faced with … Continue reading AHSNs, CLAHRCs need to do a ‘Keanu’ and rearrange matter(s) in the public interest

Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

I was digging about in my garage the other day and found an old snow globe. I am afraid I have always found these ornaments – the mainstay of souvenir shops across the world – something of a disappointment. Give them a good shake and there’s a briefly pleasing fall of artificial snow before it … Continue reading Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

The divide between public involvement in research and service delivery

Yesterday I was on a visit to the West Midlands.  The University of Birmingham, Birmingham Health Partners and West Midlands Genomic Medicine Centre (GMC) had invited me to talk about public involvement in research strategies for the region. Many organisations and voices were represented in the room.  The discussion was lively and, at times, challenging.  But … Continue reading The divide between public involvement in research and service delivery

Blog: our regions will need a stronger patient voice if health research gets the devolution bug

As a democrat it doesn’t sit well with me that the new interim Major of Greater Manchester is unelected. The excuses for it seem pretty poor. You should start as you mean to go on. Perhaps we should have sensed something was up when ‘DevoManc’ emerged as the nickname for the entity that will be … Continue reading Blog: our regions will need a stronger patient voice if health research gets the devolution bug

Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?

Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis.  The aim of the task force is to enable people to get an earlier and speedier diagnosis of their tumour in the future.  But it will also be looking at treatment and … Continue reading Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?

What have people told us about public involvement in research?

Yesterday INVOLVE hosted a meeting of about 100 public involvement leads from across the National Institute for Health Research (NIHR). There are probably nearer 200 in total across the NIHR family. This was the first time that we have ever been able to bring together people in this way. A powerful milestone. This link will … Continue reading What have people told us about public involvement in research?

Simon Stevens puts innovation and patients as innovators front-of-house in NHS

Simon Stevens, the relatively new NHS Chief Executive, put innovation front-of-house in his speech to the NHS Confederation yesterday.  He identified it as one of three elements crucial to ‘future-proofing’ the NHS for the challenges ahead.  You can read the full speech here.  But I have also included the relevant extract below as it is worth reading. A few points … Continue reading Simon Stevens puts innovation and patients as innovators front-of-house in NHS

Is UK health research ready for localism?

A glance at the events already confirmed in my diary for 2014 tells you everything you need to know about the priorities this year compared to last. Events hosted by one or more of the Academic Health Science Networks (AHSNs), Collaborations for Leadership in Applied Health Care and Research (CLAHRCs) and new Local Clinical Research … Continue reading Is UK health research ready for localism?

List of Academic Health Science Networks (AHSN), their Chairs, MDs, websites, Twitter feeds, priorities

Goodness knows what made me start to do this.  Perhaps it’s the ‘public servant’ in me.  Hey ho! Here’s a list of the Academic Health Science Networks (AHSNs), websites (click on the relevant AHSN name), their MDs, Chairs, and Twitter addresses. An interactive map of the AHSNs areas can be found on the Yorkshire and … Continue reading List of Academic Health Science Networks (AHSN), their Chairs, MDs, websites, Twitter feeds, priorities

Who’s up and who’s down in health and research this week?

1. ‘The dog ate my whole doctor’s surgery.’ Yep, it’s those dastardly GPs again. Ever since the weekend news that many cancers are first diagnosed in A&E we’ve seen the excuses just roll off their collective tongues. So much so you’d think they’d said them before. We’re underfunded, underpaid. stunned by so much change, and … Continue reading Who’s up and who’s down in health and research this week?

Notes from a ‘small island’ in health research…..otherwise known as INVOLVE

A small island has appeared off the coast of Pakistan following the tragic earthquake there last week.  The consensus of scientific opinion is that, before long, this island will disappear without trace.  In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was … Continue reading Notes from a ‘small island’ in health research…..otherwise known as INVOLVE

Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks

Fantastic to see so many people gathered in the room and in hyperspace for the launch of the Public Involvement Impact Assessment Framework (PiiAF).  You can view the prototype website here. A really important piece of work and here are my remarks from the start of the day without the jokes. Launch of the Public … Continue reading Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks

Could a non-scientist lead the MRC, Wellcome, or Royal Society in the future?

A little while ago I stumbled across a survey which said that 70% of the leaders of FTSE 100 companies had an accountancy background. In other words they were not necessarily bloodied in, or married to, their organisations core business. It makes perfect sense when you think about it. Their number one priority is to … Continue reading Could a non-scientist lead the MRC, Wellcome, or Royal Society in the future?

Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC

I seem to be visiting more CLAHRCs (Collaboration for Leadership in Applied Health Research and Care) next week than in all my time as a boy looking for new school shoes.  One of the CLAHRCs unfortunate enough to be visited by me is Northwest London. They’ve just launched a brilliant new tool to help patients … Continue reading Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC