The fundamental issue at stake here is respect for the citizen. The last month of debate about care.data feels like the previous ten years of discussion about the sharing of personal data […]
Big data, big stage, cue patients as the leading actor. Remarks at #bigdata2013 on the patient agenda
The following is a more polished and slightly amended version [the bits in brackets I didn’t say] of the remarks I made at the ABPI/NIHR conference about big data which took place […]
Cancer patients seeking information about their condition want to know about clinical trials, study shows.
This is a fascination study published by the open access journal ecancermedicalscience. I think it was actually published in November but only came to my attention via Twitter yesterday. It looks at the needs […]
Here’s hoping this works. So, (sorry John Humphries et al) rather than send you all off somewhere else, here is the pdf of the whole patient information leaflet ‘Your health records saves […]
Available in all good GP surgeries – new patient information leaflet on the use of patient data for research
This leaflet ‘Your health records saves lives’ (click on the picture below) marks the fruits of much hard work by the UK Clinical Research Collaboration (UKCRC) partnership over two years. Conceived, designed […]