What next in identifying patient priorities for health research? #JLAevaluation

I spent yesterday morning at an excellent event looking at the James Lind Alliance Priority Setting Partnerships (JLA PSPs for short!). #JLAevaluation Started in 2004, JLA PSPs have become a recognised and highly respected method for identifying shared priorities in health research among patients, carers and clinicians.  That they have is a testament to its founders but also the excellent JLA… Read More What next in identifying patient priorities for health research? #JLAevaluation

Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?

Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis.  The aim of the task force is to enable people to get an earlier and speedier diagnosis of their tumour in the future.  But it will also be looking at treatment and… Read More Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?

NIHR and NAPP announce new award for research engagement in primary care

This morning I was the guest of the National Association for Patient Participation (NAPP) whose annual conference entitled ‘Quality in Primary Care’ is taking place in Leeds today. It marks the end of their annual awareness week. NAPP’s members are made up of several thousand Patient Participation Groups (PPGs) in GP practices up and down… Read More NIHR and NAPP announce new award for research engagement in primary care

NIHR looks to go PROACTIVE with plan for research participation and engagement

Why shouldn’t you and I be able to take part in appropriate and relevant research as part of our NHS care and treatment? Why shouldn’t we be able to expect to have that discussion with our doctor as part of our diagnosis and care? Why shouldn’t we be able to access research evidence so we… Read More NIHR looks to go PROACTIVE with plan for research participation and engagement

NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE

Plain and simply good news from a citizen point of view. With thanks to INVOLVE and NIHR colleagues for making this happen, Plain English summaries in National Institute for Health Research (NIHR) funded research. The National Institute for Health Research (NIHR) is committed to making sure that each research study it funds has a clear… Read More NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE

NIHR Friday: BioResource launch has volunteers at its heart

Delighted to see today’s announcement by the National Institute for Health Research (NIHR) of the new NIHR BioResource.  The importance of the new BioResource (the main website for the BioResource is here) is underlined by the fact that not one Minister but both the Secretary of State for Health, Minister for Health plus the Chief Medical Officer, Professor… Read More NIHR Friday: BioResource launch has volunteers at its heart

@RBandH Guest blog: Promoting Clinical Research Locally – From ‘OK to Ask’ to Research Changed my Life

Promoting Clinical Research Activities and Opportunities Locally – From OK to Ask to Research Changed my Life Mark Terry, Research Office, Royal Brompton & Harefield NHS Foundation Trust (m.terry@rbht.nhs.uk) 2013 has been notable for the strong momentum provided by National Institute for Health Research (NIHR) to NHS Trusts in our efforts to raise awareness of… Read More @RBandH Guest blog: Promoting Clinical Research Locally – From ‘OK to Ask’ to Research Changed my Life

CMO as good as her word on young people’s involvement in research

The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it’s two reports. The first is the usual state of the nation summary of the population’s coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people’s health. It’s… Read More CMO as good as her word on young people’s involvement in research

Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN

So here’s something to make your crumpet and jam just a bit more palatable on Sunday afternoon…Thanks to NIR CRN. This week Health Sector TV will be broadcasting a programme entitled ‘Clinical Research: Making Patients and the NHS Better.’ The blurb says that this is ‘an important new documentary highlighting how the Clinical Research Network (as… Read More Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN

CLAHRCs could be the superheroes in quality improvement for patients in the UK

Yesterday my day began in Clerkenwell meeting with the new charity, MQ Transforming Mental Health (www.joinMQ.org). It is exciting to feel that we might at last be on the verge of seeing a strong charity profile in mental health research in the UK. But more baffling than ever why our existing mental health charities –… Read More CLAHRCs could be the superheroes in quality improvement for patients in the UK

NIHR and ABPI conference in November on ‘big data’

Click here for details of a National Institute for Health Research (NIHR) and Association of British Pharmaceuticals Industry (ABPI) joint conference on harnessing big data for health gains.  Takes place in London on 21st November. The more it is used the more I dislike the term ‘big data.’  I mean, how to alienate your public in… Read More NIHR and ABPI conference in November on ‘big data’

Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial

I hope you’ll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week’s British Science Festival and I really couldn’t put it better than this.  The ‘live trial’ is very exciting indeed and the first dip in the water for a… Read More Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial

New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR

This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements…. Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research… Read More New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR

It’s NIHR Friday: NHS Trust research activity stats published

You didn’t think I’d forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this week published its annual performance tables for research activity in each NHS Trust in England for 2012/13. You can find the figures for your local… Read More It’s NIHR Friday: NHS Trust research activity stats published

It’s NIHR Friday – Public involvement: did the research network move for you?

NIHR Clinical Research Network Survey Patient and Carer (Lay) Involvement in Research: Your Experience The National Institute of Health Research (NIHR) Clinical Research Network (CRN) Patient and Public Involvement Steering Group is running a survey to capture how being involved in research impacts on patients and carers. You should take part in this survey if… Read More It’s NIHR Friday – Public involvement: did the research network move for you?

Blog: Why the NIHR Journals Library is important from a patient perspective

NIHR Journals Library Launch 20th June 2013 As promised here’s my speaking notes from the launch of the NIHR Journals Library today.  Good to see the Minister, Earl Howe, there (I tweeted his remarks earlier) plus the CMO, Professor Dame Sally Davies, Trish Edwards, Asst Editor from the BMJ etc., Public involvement in UK health research… Read More Blog: Why the NIHR Journals Library is important from a patient perspective

NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens

I was just going to tweet this but since it is in a downloadable pdf and not actually on the face of NIHR’s website, I thought it would be helpful to post it – the membership of the Collaboration in Leadership for Applied Health Research and Care (CLAHRC) Selection Panel: Professor Huw Davies (Chair) Co-Head of… Read More NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens

Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC

I seem to be visiting more CLAHRCs (Collaboration for Leadership in Applied Health Research and Care) next week than in all my time as a boy looking for new school shoes.  One of the CLAHRCs unfortunate enough to be visited by me is Northwest London. They’ve just launched a brilliant new tool to help patients… Read More Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC