NICE makes bold intervention on clinical trials and children

It is great to see our drugs watchdog, the National Institute for Health and Care Excellence (NICE), make such a bold statement today that all children and young people with cancer should be given the opportunity to take part in clinical trials and research. The statement, which is one of seven making up NICE’s ‘Quality […]

It’s out! Report of GenR young people in health research event presented to CMO

Yesterday I joined colleagues from the Medicines for Children Research Network (MCRN) to present the report of the Generation R event last year, to the Chief Medical Officer (CMO), Professor Dame Sally Davies. For many people Generation R at the Science Museum was the highlight of 2013.  It was designed, organised and delivered by young […]

Young people in research have sent me a postcard, have a look….

The Generation R event – organised and delivered by young people in research – has to be one of the highlights of my year.  You can find a write-up from the September event here. Today the Generation R crew sent me a postcard about what is happening next. Note the key messages to emerge from the […]

CMO as good as her word on young people’s involvement in research

The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it’s two reports. The first is the usual state of the nation summary of the population’s coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people’s health. It’s […]

Generation R: young people improving research event: 11 Sept 2013

Been meaning to post this for a while and not just because the poster design is going to brighten up my blog pages for a while. Our Medicines for Children Research Network (MCRN) really has been an exemplar for involving young people in research.  Find something as good across Europe and I will eat my […]

Survey: Have your say in the #red4research debate: vote now!

So, earlier this week, I wrote a very brief  blog about a visit to Nottingham where I met some of the staff from the Medicines for Children Research Network (MCRN) in the East. They have recently adopted a new ‘red for research’ uniform that all staff have to wear in clinical settings.  You can read […]

Turning ‘red for research:’ staff show their true colours

This deserves a wider audience. During my visit to Nottingham yesterday I met some of the staff from the Medicines for Children Research Network (MCRN) in the East.  They have recently adopted a new ‘red for research’ uniform that all staff have to wear in clinical areas.  You can read more about it in their […]

Royal College looks to boost child health research with children’s charter

I am prone to beating up our Royal Colleges for one reason or another.  But, over the last few years, I have grown to admire and respect the work of one of their number in particular - the Royal College of Paediatrics and Child Health (RCPCH). Yesterday, RCPCH launched a new report entitled ‘Turning the Tide: […]

New paediatric research facility opens at Alder Hey

A new paediatric clinical research facility has opened today at Alder Hey Hospital in Liverpool.  Funding has come from the university, an Alder Hey appeal, and the National Institute for Health Research (NIHR). A very important development for children and their parents and the region’s growing profile as a hub of nationwide efforts to improve child health. Click […]

Why Georgia is an example to us all on clinical trials

This is a piece I spotted in the local press in Wirral about schoolgirl, Georgia Semple, who is a member of the Young People’s Advisory Group for the NIHR Medicines for Children Research Network (MCRN). The Group helps with the design of clinical research – from conveying their views and concerns to researchers, to writing […]