Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve

I didn’t think so. Do you get those nagging calls about PPI? It’s usually early evening. Sometimes it is a recorded voice message. Sometimes a text. Very occasionally it is a real person from the unreal environment of a call centre. Unfortunately they are all contacting me about that other PPI – yes, Payment Protection… Read More Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve

From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

It’s one of the hardest things they will have to do.  It is physically and mentally draining.  For many it will feel a lonely place.  The atmosphere will be unlike anything they have ever experienced before. Some will feel as if they are in a state of suspended animation. Others will feel as if they have leapt off a cliff… Read More From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

Regulators push openness agenda on raw trial data…and EUPATI issues call for examples of educational materials on medicines development

Yes, that is a long headline is it not?  PharmaTimes and others cover a paper in PloS Medicine authored by a number of medicines regulators including the European Medicines Agency (EMA), calling for openness in raw trial data. The three pronged approach they suggest looks like a good basis for discussion.  It would be interesting… Read More Regulators push openness agenda on raw trial data…and EUPATI issues call for examples of educational materials on medicines development

EU initiative to boost information for patients on medicines development

The EU economy might be splintering apart.  But, meanwhile, a number of patient/public/private organisations are ‘euro-zoning’ in on the task of providing better information for patients on medicines development. The new initiative – which was launched on 1st February – is called the European Patients Academy on Therapeutic Innovation  or EUPATI for short. Thank goodness they did… Read More EU initiative to boost information for patients on medicines development