Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve

I didn’t think so. Do you get those nagging calls about PPI? It’s usually early evening. Sometimes it is a recorded voice message. Sometimes a text. Very occasionally it is a real person from the unreal environment of a call centre. Unfortunately they are all contacting me about that other PPI – yes, Payment Protection… Read More Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve

Patients wanted to talk about public involvement in surgical trials #PIRRIST @joannacrocker

I’ve been helping colleagues get this study off the ground so would appreciate your help either in spreading the word or by contributing directly. As follows. ….Are you currently involved in a surgical research trial? If so we need your help! We are looking for patient or lay advisers, partners or representatives to take part… Read More Patients wanted to talk about public involvement in surgical trials #PIRRIST @joannacrocker

There’s nothing wrong in being a poster child for public involvement @bournemouthuni

The small things in life can tell us much about how the world is changing. Whether it’s commuters carrying bottles of water. Or the papers left on trains at the end of a journey. What might such tell-tale signs of cultural change be, when it comes to public involvement? Is it the fact that public involvement… Read More There’s nothing wrong in being a poster child for public involvement @bournemouthuni

From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

It’s one of the hardest things they will have to do.  It is physically and mentally draining.  For many it will feel a lonely place.  The atmosphere will be unlike anything they have ever experienced before. Some will feel as if they are in a state of suspended animation. Others will feel as if they have leapt off a cliff… Read More From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

The devil’s in the manual – health research regulation and public involvement @HRA_Latest

When I was growing up I used to help my Dad do DIY around the house.  Our perennial companion was a thick, hard-bound manual with step-by-step guides on how to do anything and everything.  No job was too big or too small for it.  From replacing a chimney stack to changing a plug. Dad passed… Read More The devil’s in the manual – health research regulation and public involvement @HRA_Latest

There is indeed method in our ‘madness’ – being METHODICAL about public involvement

Polonius: [Aside] Though this be madness, yet there is method in’t. Hamlet Act 2, scene 2, 193–206 If you are in some way connected to public involvement in health research then you get used to ‘the look.’ Sometimes it’s a vacant stare or a gaze falling slowly across the face like the sun going down.  In other instances… Read More There is indeed method in our ‘madness’ – being METHODICAL about public involvement

Babraham Institute pins down public attitudes to basic science

Public dialogue exercises can come across a bit like the public engagement version of a ‘lock-in.’  They are undoubtedly enjoyable – for all concerned including the participants.  However, there can be a feeling that people are being force-fed information until they recant their ways! That said, this tool (of choice, for many) is a useful way of exploring people’s views on issues in-depth and over… Read More Babraham Institute pins down public attitudes to basic science

Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research

The Nuffield Council on Bioethics have today published their report: ‘The collection, linking and use of data in biomedical research and health care: ethical issues’ following months of inquiry by an expert working group Chaired by Professor Martin Richards.  Here’s a copy of the actual report. There is much coverage in the media already including the… Read More Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research

MRC publishes new communications and engagement strategy (plus new film!)

The Medical Research Council (MRC) has published a refreshed communications and engagement strategy. There is a section on public involvement on P12 of the document which is the fullest narrative I have seen of their corporate intentions around this aspect of working in partnership with the public. It is a good document and important to… Read More MRC publishes new communications and engagement strategy (plus new film!)

Patients hack medical research in planned attack

Hacking in this context is what we call ‘bringing people with different views and skills together to work on problems.’ [Sorry to disappoint the headline chasers but I hope you’ll stay with me] And ‘hackathons’ – events where such hacking activity can take place – are increasingly common across the health arena as a means of solving problems. In… Read More Patients hack medical research in planned attack

Health Research Authority looks for good practice in identifying research participants – survey.

Excuse my laziness but it is Saturday. Here’s a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA… Read More Health Research Authority looks for good practice in identifying research participants – survey.

Young people in research have sent me a postcard, have a look….

The Generation R event – organised and delivered by young people in research – has to be one of the highlights of my year.  You can find a write-up from the September event here. Today the Generation R crew sent me a postcard about what is happening next. Note the key messages to emerge from the… Read More Young people in research have sent me a postcard, have a look….

Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial

I hope you’ll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week’s British Science Festival and I really couldn’t put it better than this.  The ‘live trial’ is very exciting indeed and the first dip in the water for a… Read More Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial

A bit of a public involvement mash-up including that idea for an NHS Civil Society Assembly

So here’s my unsubstantiated personal theory. It is that one of the root causes of the problems besetting today’s NHS’ is our failure to pay proper heed to the growing crisis in accountability and responsibility that has been a feature of our increasingly complex health system over the last seventy years.  From almost the day… Read More A bit of a public involvement mash-up including that idea for an NHS Civil Society Assembly