Patients hack medical research in planned attack

Hacking in this context is what we call ‘bringing people with different views and skills together to work on problems.’ [Sorry to disappoint the headline chasers but I hope you'll stay with me] And ‘hackathons’ – events where such hacking activity can take place – are increasingly common across the health arena as a means of solving problems. In […]

Health Research Authority looks for good practice in identifying research participants – survey.

Excuse my laziness but it is Saturday. Here’s a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA […]

Young people in research have sent me a postcard, have a look….

The Generation R event – organised and delivered by young people in research – has to be one of the highlights of my year.  You can find a write-up from the September event here. Today the Generation R crew sent me a postcard about what is happening next. Note the key messages to emerge from the […]

Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial

I hope you’ll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week’s British Science Festival and I really couldn’t put it better than this.  The ‘live trial’ is very exciting indeed and the first dip in the water for a […]

A bit of a public involvement mash-up including that idea for an NHS Civil Society Assembly

So here’s my unsubstantiated personal theory. It is that one of the root causes of the problems besetting today’s NHS’ is our failure to pay proper heed to the growing crisis in accountability and responsibility that has been a feature of our increasingly complex health system over the last seventy years.  From almost the day […]

Help us make sense of the placebo effect…

I am involved in this follow-up study to one published a few months ago (and covered on this blog) about the poor information given to patients about the placebo in clinical trials.  In the first instance the researchers are looking for people to input into the design of a leaflet.  Details and contact email follows: […]

Healthtalkonline looking for people to talk about their experiences of patient and public involvement

Healthtalkonline is looking for volunteers to be interviewed about their experiences of patient public involvement in research design and delivery.  Flyer with contact details below.

Cancer patient experience survey results show variations in access to clinical trials and research

The results of the annual cancer patient experience survey are out today. For those of us committed to improving patient access to clinical trials and other research, this year’s report is particularly interesting.  As far as I know, this is the first year that the survey asked patients whether taking part in research had been discussed […]

There is no point to the javelin

It has come to this.  The world’s top tennis players rush their shots to beat an 11pm curfew.  Bruce and Sir Paul are turned-off mid-performance.  And they don’t use real javelins in schools. Looking across the the athletics field at my sons’ school sports day, I spied a clutch of children competing in the javelin.  Except this […]

My key points to the ‘Caldicott 2′ Review of Information Governance earlier today

Actually that’s not quite true because, as is not uncommon with these things, the evidence session I attended today was more of a discussion, and a very good one it was too.  But I did more or less cover the following points.  At the end we were asked to express one wish about what happens […]

The NHS Commissioning Board Draft Mandate and patients in health research

The Shard went up (officially).  And the NHS Commissioning Board Draft Mandate came down from on high.  All on the same day.  Add the odd torrential downpour with its associated misery and these could be Biblical times. I have come to the conclusion that it is my fate to be locked away somewhere remote and with an intermittent […]

Are you a patient? Then, I’m holding you for questioning. You have the right to…..

Just in case you had missed it, it’s all about patient experience from now on!  And a good thing too. Or, at the very least, it seems the intention is to ask people more questions about their experience.  A lot more questions in fact. In the new world, I wonder, will we be met by NHS ‘chuggers’ […]