I hope the following is helpful to those of you looking for biographical information about me. There is a short ‘bio’ and photo of me at the very end just for conference organisers!
Simon Denegri, Chair of INVOLVE and National Director for Public Participation and Engagement in Research
I am National Director for Patients and the Public at the National Institute for Health Research (NIHR), and Chair of INVOLVE – the national advisory group for the promotion and support of public involvement in research funded by NIHR.
Prior to this I was Chief Executive of the 127-strong Association of Medical Research Charities (AMRC) from 2006 until 2011. This followed a three-year stint as director of corporate communications at the Royal College of Physicians of London from 2003 to 2006. Before this I was assistant chief executive at the Alzheimer’s Society (UK) from 2002 to 2003. I also worked for the Society from 1992 until 1997 becoming its first head of public affairs. Between 1997 and 2000 I worked as Procter & Gamble’s Corporate and Financial PR Manager based at the company’s headquarters in Cincinnati, Ohio, USA. On my return I took up a post as director of communications at the Sainsbury Centre for Mental Health.
I am a member of the National Institute for Health Research (NIHR) Advisory and Strategy Boards, as well INVOLVE’s representative on the UK Clinical Research Collaboration (UKCRC) Board. I am also a member of the Innovation4Innovation late stage review panel, Chair of RAFT]s External Advisory Board (RAFT is responsible for establishing the national portal for people with dementia and their carers to register to take part in research). I am also a member of the External Advisory Group for the Clinical Practice Research Datalink (CPRD) service. Other committees and groups that I sit on include the James Lind Alliance (JLA) Strategy Development Group, the Y-Touring Steering Group responsible for overseeing the implementation of the Wellcome Trust Strategic Funding Award received earlier this year.
In 2008 I chaired the Review Committee of the Coalition for Medical Progress (CMP)/Research Defence Society (RDS)’s future activities relating to animal research. I was a member of the BBC’s Appeals Advisory Committee from 2007 until 2012.
Education and professional interests
My background is in strategic communications and public affairs. I studied politics and legislative studies at the University of Hull, and I am a member of the Chartered Institute of Public Relations (MCIPR). I am also a fellow of the Royal Society of Arts and member of the Royal Society of Medicine.
I write and speak on issues concerning the public and health research. Particular areas of interest include: public involvement in research; public attitudes to science; use of online and digital media for public involvement and engagement; health research regulation; the pharma industry; dementia and mental health. In my spare time I enjoy listening to and playing music, writing and going to the cinema and I am also a weather enthusiast. My current roles are not full-time and I undertake freelance strategic consultancy for a range of organisations. Current and past clients include the Faculty of Pain Medicine, National Institute for Academic Anaesthesia and the Association of British Neurologists. I am always happy to help out if I can!
Simon Denegri is National Director for Patients and the Public at the National Institute for Health Research (NIHR), and Chair of INVOLVE – the national advisory group for the promotion and support of public involvement in research funded by NIHR. He was Chief Executive of the Association of Medical Research Charities (AMRC) from 2006 until 2011 and, prior to this, Director of Corporate Communications at the Royal College of Physicians from 2003. He also worked in corporate communications for Procter & Gamble in the United States from 1997 to 2000. He has a long-standing personal and professional interest in the needs and priorities of people with dementia and their carers and currently chairs the Lay Champions Group for the national portal on dementia research that is to be launched this year. He is a member of the NIHR Advisory and Strategy Boards, and a Board member of the UK Clinical Research Collaboration (UKCRC), Farr Institute and care.data programme respectively. He blogs about the public and health research at http://simon.denegri.com/ and publishes his poetry at http://otherwiseknownasdotcom.wordpress.com/
Articles and interviews
International Innovation in 2013, published by Research Media: p32_NHS_Involve Also here: http://www.research-europe.com/index.php/2013/10/simon-denegri-involve-chair-and-national-director-public-participation-and-engagement-on-research-nhs-involve/
Patient and public involvement in research: future challenges, Evidence-Based Nursing, June 2013.
It’s plain and simple: transparency is good for science and in the public interest: the launch of Trials Simon Denegri and Helene Faure
Trials, 14:215 (12 Jul 2013)
Professional Standards Authority for Health and Social Care. Piece on compassion and humanity in regulation. July 2014, http://www.professionalstandards.org.uk/get-involved/enewsletter/summer-2014
Piece about NIHR approach to public involvement in Research Fortnight (Jan 2015)