Simon Denegri Biography

I hope the following is helpful to those of you looking for biographical information about me.  There is a short ‘bio’ and photo of me at the very end just for conference organisers!

Simon Denegri, National Institute for Health Research (NIHR) National Director for Patients and the Public in Research and Chair, INVOLVE

I was appointed the National Institute for Health Research’s (NIHR) first ever National Director for Patients and the Public in Research in 2012 and Chair of INVOLVE – the national advisory group for the promotion and support of public involvement in research funded by NIHR – in 2011.

Prior to this I was Chief Executive of the Association of Medical Research Charities (AMRC) from 2006 until 2011.  This followed a three-year stint as director of corporate communications at the Royal College of Physicians of London from 2003 to 2006.  Before this I was assistant chief executive at the Alzheimer’s Society (UK) from 2002 to 2003.  I also worked for the Society from 1992 until 1997 becoming its first head of public affairs.  Between 1997 and 2000 I worked as Procter & Gamble’s Corporate and Financial PR Manager based at the company’s headquarters in Cincinnati, Ohio, USA.   On my return I took up a post as director of communications at the Sainsbury Centre for Mental Health.

I studied politics and legislative studies at the University of Hull, and I am a member of the Chartered Institute of Public Relations (MCIPR).  I am a member of the Royal Society of Medicine (RSM). I write and speak on issues concerning the public and health research.  Particular areas of interest include:  public involvement in research; public attitudes to science; use of online and digital media for public involvement and engagement; health research regulation; the pharma industry; dementia and mental health.  In my spare time I enjoy listening to and playing music, writing and going to the cinema and I am also a weather enthusiast.

Chairmanships

  • Lay Champions Group, Join Dementia Research (JDR), 2012 –
  • UK Clinical Trials Gateway (UKCTG) Project Board 2013 –
  • NIHR CLAHRC North Thames International Expert Advisory Board 2014 –
  • Patient and Public Involvement Strategic Group, North Thames Genomic Medicine Centre (GMC) 2015 –

Boards and Committee Memberships (current)

  • Member, NIHR Advisory Board 2010 –
  • Member, NIHR Strategy Board 2011 –
  • Member, NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre 2013-
  • Member, Clinical Practice Research Datalink (CPRD) External Advisory Group 2013 –
  • Member, care.data Programme Board 2014 –
  • Member, British Medical Journal (BMJ) Patient Advisory Group 2014 –
  • Member, Farr Institute International Advisory Board –
  • Member, COMET Patient and Public Involvement and Engagement Working Group 2015 –
  • Member, WEB-RADR Project Advisory Board 2015 –
  • Member, Open Trials Advisory Board 2015 –
  • Member, EPSRC MeDe Innovation External Advisory Board 2015 –
  • Member, UK Clinical Research Collaboration (UKCRC) Board 2006 –
  • Gold Member, Crystal Palace Football Club Season Ticket Holder

Editorial Boards

  • Member, International Journal for Engagement and Involvement 2015 –
  • Member, Research for All 2015 –

International

  • Member, Canadian Institutes for Health Research (CIHR) Adjudication Panel for Support for Patient Orientated Research (SPOR) Units 2012 –
  • Member, International Advisory Board for The Farr Institute of Health Informatics Research 2014 –
  • Member, Patient and Public Involvement Advisory Board for the EU Joint Programme, Neurodegenerative Disease Research (JPND) 2014 –
  • Member, International Association for Participation (IAP) International Awards 2015

Reviews (current first)

  • Member, Academy of Medical Sciences (AMS) ‘Evaluating evidence in health’ Oversight Group 2015 –
  • Contributor, Accelerated Access Review, 2015 –
  • Member, ‘Research into factors affecting public engagement by researchers’ Steering Group, 2014 –
  • Chair, ‘Breaking the Boundaries’ strategic review of public involvement in NIHR research (2014/5); report and recommendations published as ‘Going the Extra Mile: a strategic review of public involvement in the NIHR,’ 2015
  • Chair, Review of the Coalition for Medical Progress (CMP)/Research Defence Society (RDS) future activities relating to animal research, 2008

Short biography

Simon Denegri is National Director for Patients and the Public in Research at the National Institute for Health Research (NIHR), and Chair of INVOLVE – the national advisory group for the promotion and support of public involvement in research funded by NIHR. He was Chief Executive of the Association of Medical Research Charities (AMRC) from 2006 until 2011 and, prior to this, Director of Corporate Communications at the Royal College of Physicians from 2003.  He also worked in corporate communications for Procter & Gamble in the United States from 1997 to 2000.  He has a long-standing personal and professional interest in the needs and priorities of people with dementia and their carers and currently chairs the Lay Champions Group for the national portal on dementia research that is to be launched this year.  He is a member of the NIHR Advisory and Strategy Boards, and a Board member of the UK Clinical Research Collaboration (UKCRC), Farr Institute and care.data programme respectively.  He blogs about the public and health research at http://simon.denegri.com/ and publishes his poetry at http://otherwiseknownasdotcom.wordpress.com/

Approved Picture

Articles and interviews

International Innovation in 2013, blished by Research Media: p32_NHS_Involve  Also here:  http://www.research-europe.com/index.php/2013/10/simon-denegri-involve-chair-and-national-director-public-participation-and-engagement-on-research-nhs-involve/

Patient and public involvement in research: future challenges, Evidence-Based Nursing, June 2013.
 It’s plain and simple: transparency is good for science and in the public interest: the launch of Trials Simon Denegri and Helene Faure
Trials, 14:215 (12 Jul 2013)

Professional Standards Authority for Health and Social Care. Piece on compassion and humanity in regulation.  July 2014, http://www.professionalstandards.org.uk/get-involved/enewsletter/summer-2014

Piece about NIHR approach to public involvement in Research Fortnight (Jan 2015) http://www.researchresearch.com/index.php?option=com_news&template=rr_2col&view=article&articleId=1348817

There should be only one priority in clinical research – to put the needs of the consumer first:  Clinical Investigation Vol. 5, No. 8, Pages 677-679 , DOI 10.4155/cli.15.32 (doi:10.4155/cli.15.32)

 

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